Kayden’s smile will melt your heart. That he has developed a disease that will require a bone marrow transplant will break it.
Congenital Amegakaryocytic Thrombocytopenia (CAMT) is an inherited disorder characterized by bone marrow failure. Fewer than 100 cases have been documented. Kayden was diagnosed at 10 weeks old.
Kayden’s mom works with his doctors and other parents affected by CAMT to learn about available options. “I want what every mom wants: What is best for my child,” she says. “When [life threatening illness] happens, it changes your life around.”
Bone marrow transplants are the only cure for CAMT and other rare and fatal blood disorders, but finding a close match is key. Matching is based upon Human Leukocyte Antigen (HLA) type and – while some are common – new types continue to be found. A large and diverse registry of potential donors is critical for being able to find a match for every person affected by a disorder like Kayden’s.
If you have not already, please consider joining the national donor registry. U.S. military members (active, reserve, and retired), their dependents, and Department of Defense employees are eligible to join the registry through Salute to Life; others may join through the civilian arm called the National Marrow Donor Program or Be The Match.